Détail du document
Identifiant
doi:10.1007/s00415-022-10996-1...
Auteur
Helleman, Jochem Bakers, Jaap N. E. Pirard, Evelien den Berg, Leonard H. Visser-Meily, Johanna M. A. Beelen, AnitaLangue
enEditeur
Springer
Catégorie
Medicine & Public Health
Année
2022
Date de référencement
31/03/2022
Mots clés
motor neuron disease amyotrophic lateral sclerosis respiratory function vital capacity remote monitoring validity test tests supervised patients vc unsupervised home-monitoring mndRésumé
Background Home-monitoring of spirometry has the potential to improve care for patients with a motor neuron disease (MND) by enabling early detection of respiratory dysfunction and reducing travel burden.
Our aim was to evaluate the validity and feasibility of home-monitoring vital capacity (VC) in patients with MND.
Methods We included 33 patients with amyotrophic lateral sclerosis, progressive muscular atrophy or primary lateral sclerosis who completed a 12-week home-monitoring protocol, consisting of 4-weekly unsupervised home assessments of VC and a functional rating scale.
At baseline, during a home visit, patients/caregivers were trained in performing a VC test, and the investigator performed a supervised VC test, which was repeated at final follow-up during a second home visit.
Validity of the unsupervised VC tests was evaluated by the differences between supervised and unsupervised VC tests, and through Bland–Altman 95% limits-of-agreement.
Feasibility was assessed by means of a survey of user-experiences.
Results The 95% limits-of-agreement were [− 14.3; 11.7] %predicted VC, and 88% of unsupervised VC tests fell within 10%predicted of supervised VC.
88% of patients experienced VC testing as easy and not burdensome, however, 15% patients did not think their VC test was performed as well as in the clinic.
94% of patients would like home-monitoring of VC in MND care.
Discussion Unsupervised VC testing at home, with prior face-to-face training, is a valid and time-efficient method for the remote monitoring of respiratory function, and well-accepted by patients with MND and their caregivers.
Helleman, Jochem,Bakers, Jaap N. E.,Pirard, Evelien,den Berg, Leonard H.,Visser-Meily, Johanna M. A.,Beelen, Anita, 2022, Home-monitoring of vital capacity in people with a motor neuron disease, Springer
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