Long-Term Quality of Life for Patients with Spina Bifida

Ball, Madeleine A. Z.; Clayton, Douglass B.

doi:10.1007/s11884-024-00755-5

Long-Term Quality of Life for Patients with Spina Bifida

Document detail

ID

doi:10.1007/s11884-024-00755-5...

Author

Ball, Madeleine A. Z. Clayton, Douglass B.

Langue

Editor

Springer

Year

2024

listing date

5/8/2024

Keywords

spina bifida quality of life outcomes quality of life surveys neurogenic bladder patients spina bifida domains life

Metrics

Abstract

Purpose of Review This review explores the literature that currently exists regarding quality of life for patients with spina bifida and assesses screening tools available for practitioners to assess these outcomes.

Domains addressed include health related quality of life, relationships, bowel and bladder dysfunction, sexuality, pain, and mood.

Recent Findings Several recent papers have assessed available questionnaires and reviewed findings of key quality of life domains, with varying results.

Summary Historically, the literature has focused on surgical outcomes for patients with spina bifida.

Though some authors have begun to explore quality of life for this patient population, particularly in the short-term, a paucity of quality, long-term studies exist that describe quality of life domains or offer potential targets for improvements in outcomes.

Ball, Madeleine A. Z.,Clayton, Douglass B., 2024, Long-Term Quality of Life for Patients with Spina Bifida, Springer